I have a complex situation. I guess I already knew that, but that perspective from one
of the hospitalists I was recently visiting in St. Mary’s Hospital struck a new
chord. Add the fact that I had
fallen so far into suffering that I lost track of where I was. I also had to laugh to myself because
his perspective was based solely on the physical ramifications of my scenario. With a glance at the mental, emotional
and spiritual, complex becomes a drastic understatement. Weave in the philosophic polarity
between holistic and allopathic treatment, and the fact that my health
decisions are completely self-guided choices, and just the search for a synonym
that adequately describes this “complex” situation becomes a daunting
task. It all calls for a long walk
in the woods. And, unfortunately,
my energy, mobility, the horrific air quality and 20-degree weather really nix
that as being a reasonable and prudent remedy. So, I turn to writing.
Here, I attempt to purge the stagnation of thoughts and feelings that
have not been flowing. I attempt
to make some sense of the insane.
I search for clarity and guidance on icy slopes under the dim light of
hard winter. I look for
distractions from the daydream of an endless float down the dammed Colorado
River. I seek visions of a future
worth working so hard to live for, and I simply muse the words “working so
hard.” Do I need to find a reason
to dig myself out of another deep hole?
I certainly feel much more philosophical than practical in
my mind this morning. After a good
12 hours of much needed sleep following two miserable nights at the hospital I
feel some relative level of calm.
I might have the post haze of hydrocodone and cannabis but am currently
drug and pain free. Confined
freedom, getting to leave my cell to walk the fenced yard. I would breath in the sun if it offered
itself. Instead I appreciate the
comfort of soft fleece and down.
And I am amazed. I have
spent my life developing, whether I like it or not, a relationship with
irritable bowels. Call it
Ulcerative Colitis, call it Crohn’s, call it six major surgeries, three missing
organs and a poop bag to boot.
Call it what I like, I’ve never known it like I know it now. And before now, as I have related to
some friends, its lifetime tribulations have made a year with Leukemia seem
like a walk in the park. Leukemia,
especially acute, is a freak the fuck out, not a walk in the park. So what is it all together? As far as I know, I’m the only one that
knows. I guess I’ll sit on that
for a while…
7 comments:
so. beautifully. written. i think of you every single day.
as I read through this update my heart and overabundance of feel good energy I send to you via spirit. I admire you for keep on keeping on...knowing myself, I would not want to continue so bravely as yourself. I used to work for St. Mary's home health care and took care of one person with something 'like' what you have (all are individual for sure!) and I am so sorry you have this condition. Keep writing and finding outlets of your true beautiful self. My best wishes of comfort and recovery to you, and also research into solutions. My dis-ease is also very hidden and until then....keep on writing. Sorry I have not made it to any of your events. With Love and Warm Regards, Susan
Crohn's is such a vicious disease, Zach, and I've admired you since you were a little guy for the grace with which you've handled all the (pardon the pun) shit life has thrown at you. In some inexplicable way, it has all seemed to make your spirit shine more all the time. I hope writing provides an outlet and source of comfort. My love and most healing thoughts are with you. Kathie
I think of you every time I look at the aprons hanging on the wall for sale and every time I call my son since his name is Zachariah also. So lots of good thoughts and love coming your way! Your writing is wonderful...
Sending you love and thoughts of sunshine.
Hey Zach. So sorry for your suffering and struggle, dear friend. Hope the return of the sun will be soon and with it, brighter days for you, brother. So many sending love and good thoughts for your healing. Much love and peace.
Oh, Myself,
You come and go,
Through the paths of time and space.
In useless play,
You'll not find the way,
So set your course and go.
Breathe my love, breathe my love, breathe in the quiet center.
Excerpts from "Kabir" a song by Snatam Kahr. Love you Z, lots. Linda McB
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